I am a "Functional Movement Disorder" Sufferer. I decided to set up this site to share any information and knowledge I have found, about this "very little known about" disorder. *PLEASE NOTE THAT THIS SITE IS ALL MY OWN THOUGHTS AND INFORMATION I HAVE FOUND, PUT TOGETHER TO HELP OTHERS IN THEIR SEARCH FOR ANSWERS THE SAME AS MYSELF. This site will grow slowly, as I gather together all the information I have already found. Along with the new information I find in my continued research, which I will put on in time.
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It is very possible that you may have seen the above quote before, and I’m sure you all have your own thoughts and take on the story behind the words. Here are mine Putting the glass down is easier said than done in some cases, as the person may have no idea what the glass contains, or why they picked…
Information is key! I have posted on a few leaflets / PDF’s, and some published neurological papers written by Doctors and Consultants. They are in the drop down “Interesting Medical Papers & Information” tab. There are some interesting papers if you want to read up on this disorder, and things related to the brain. I will keep adding to these…
I implore and question any psychologist or psychiatrist , why do you believe “Talking Therapy” can help Functional Movement Disorder? My leg has been in a constant involuntary muscle spasm for over five hours now! I am not sure how a person is supposed to stay positive when they live in constant pain. With the many symptoms this disorder has,…
(The above is a picture of Neurons connecting to other Neurons) I have set up some forums for anyone that is interested in wanting to post questions, or chat. Also one for if anyone has information, or diagrams they feel they would like to share, that may be of use to others with our little known about disorder. The quote…
Klebsiella pneumoniae’s double cell wall means it is resistant to many antibiotics. Here is a link to the BBC News health site by Susan Watts Newsnight Science editor, BBC News http://www.bbc.co.uk/news/health-20554921 Watch Susan Watts’ full report on the fight against drug resistant bacteria. This story gives a scary insight into how bacteria is growing and evolving, faster than our treatments…
Stress can have a massive impact on both a persons brain and body, I sufferer from a condition called Functional Movement Disorder. This is a psychogenic neurological disorder, caused by past build up of life stresses that at a certain point made my brain in effect suddenly have a disconnection of the central nervous system. It means now my brain…
The Brain is made up of a Hundred Billion Neurons? All those neurons fire chemical responses to one another, sending requests for all our body movements. The brain is the most fascinating part of the body, the one part we will probably never ever fully understand. Functional Movement Disorder, is one of the one things that may never be understood.…
A must read for any Psychogenic Disorder sufferers! A very interesting piece in the Psych Central, regarding how the brain in psychological patients does actually change whilst having a psychogenic episode! That the psychogenic function difference shows up on a PET Scan even whilst the patient is, or is not, having a psychogenic episode. http://psychcentral.com/news/2013/02/27/unexplained-psychological-illness-linked-to-brain-abnormalities Happy reading
Information for all disabled people who claim benefits, and the new upcoming change to our DLA and Mobility benefits system payments with effect from 8th April 2013. When will it effect you? Claiming PIP https://www.gov.uk/pip-checker This is the link to check on when you may be effected by the new Personal Independence Payment (PIP) and when you can expect to…
Information Friday 8 March is the date when the new driving regulations for people with epilepsy will become law. The changes are on the Epilepsy website, see the link below for all further information: http://www.epilepsy.org.uk/news/news/date-uk-driving-licence-law-announced This is very important information for any drivers, please check it out. I hope this information helps
I was checked for this Antiphospholipid blood test , right at the beginning of my becoming ill. It came back clear, but I fit it in many ways but not all. For anyone interested in reading more, here is a link to information regarding the testing and how it effects the body’s’ autoimmune system. http://www.netdoctor.co.uk/diseases/facts/antiphospholipid.htm It makes for interesting reading,…
I haven’t been well since changing my tablets to Gabapentin, my increased head attacks and seizures, my breathing problems, and pretty much the rest of my body. I did a bit of research, and am now questioning the Gabapentin tablets being given to me as a Non Epileptic sufferer. As these tablets seem more aimed at actual epileptics, as even…
Check out the new page in the pull down for information, about “Foot Massaging” Hope it helps some of you
We are not aware of the vast amounts of nervous system activity that occur below the brain’s level of consciousness. Such activity is mainly the province of the ANS (along with the enteric division, which controls most of the abdominal organs, chiefly the stomach and intestines). We can think of the ANS (Autonomic Nervous System) as our “automatic pilot”. It…
Check out my personal daily blog, today I am off to see the anaesthetist. Not looking forward to any of it http://www.dystoniasufferer.com/2013/01/10/appointment-with-the-anaethetist/ Hope you all have a good day folks, and take care of yourselves
Happy New Year to all, I hope you have all had an eventful last couple of days. I just thought that if anyone was interested in seeing the life of a “Functional Movement Disorder” sufferer, more from the inside of their mind. Well here is the link to my blog: www.dystoniasufferer.com You will note it is named Dystonia Sufferer, because…
HAPPY NEW YEAR TO ALL! Thanks to you all for reading, commenting, and for keeping me going during 2012. I look forward to a good year ahead for us all, in 2013. Have a great evening folks x
I have functional movement disorder, a neurological movement disorder where my central nervous system has at some time in the past broken. I have a disconnection, so my brain no longer sends or receives the signals properly anymore for my body movements. I have lots of overlapping symptoms from other movement disorders, such as MS, Parkinson’s, ME, Fibromyalgia, Chorea, Dystonia,…
I would like to wish all my wonderful readers- A VERY HAPPY CHRISTMAS DAY! I hope you all have a fabulous day, with lots of fun and hopefully pain free. Or at least a small pain free time xxx
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