The Autonomic Nervous System

We are not aware of the vast amounts of nervous system activity that occur below the brain’s level of consciousness.
Such activity is mainly the province of the ANS (along with the enteric division, which controls most of the abdominal organs, chiefly the stomach and intestines).

We can think of the ANS (Autonomic Nervous System) as our “automatic pilot”. It monitors internal conditions such as temperature and the levels of chemical substances and keeps these within narrow limits; it also controls processes we rarely think about such as heart rate, breathing, digestion,and excretion, by stimulating muscles to contract and glands to release their products.

There are two divisions – the sympathetic and the parasympathetic – of the ANS, the complementary actions if which are shown below.

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Here is a very interesting piece to note:

Out Of Our Control
When overwhelming emotions such as sudden grief sweep through the body, this is mainly the result of ANS activity.
It takes time and mental effort for the brain to reassert conscious control.

The information above is sourced from Dr Alice Roberts “The Complete Human Body”

More About Me & Living With Functional Movement Disorder

I have functional movement disorder, a neurological movement disorder where my central nervous system has at some time in the past broken. I have a disconnection, so my brain no longer sends or receives the signals properly anymore for my body movements.

I have lots of overlapping symptoms from other movement disorders, such as MS, Parkinson’s, ME, Fibromyalgia, Chorea, Dystonia, CRPS, Migraines, Athritis, and others too.

I wake every day in pain, and with my hands curled, my arms and elbow joints in agony. My legs in pain, and now my feet (mostly my left foot) in cramp. So I have tablets in a tub ready on, my bedside table to take immediately I awake.
I then rub muscle gel into all my body areas that hurt and my joints.

Along with all this I also have non epileptic attacks and seizures. I also have the drop attacks.
In fact, my body seems so greedy as if it wants to have a bit of every ailment going!

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It is very hard going, and this is my life every day for the rest of my life.

My Neurology Consultant says I will have it for life, but that it may wax and wane. So I may have good days and bad days, but will never be fully physically fit again.

My Neuro a psychologist is of the same train of thought, although he is trying to help me get my head attacks and pains a little better (but with no promises!). Unfortunately he says I will have to learn to live with the rest of my movement problems.

Favourite saying – learn to live,with your abilities, rather than your disabilities!
A good saying I think ๐Ÿ™‚

I try my hardest to stay chipper, to be the funny happy person I used to be before I got all this.
You see this time last year, I was still fine. I could still walk, I could still dance. I still had a life.
Now I live day to day, and on some of those days, I have to live hour to hour. It all depends on my attacks, and how my body decides to mess with my mind!

You see there is nothing wrong with my mind, I can think just fine. It is my brain that is broken, the machine, the cogs, that make my body work.

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I hate that I now feel trapped in a body, that I no longer have real control over.

Thanks for reading ๐Ÿ™‚

Aww I Hurt


Image from Google pictures.

I’ve been busy all week, trying to write about my weekend away in London over the Bank Holiday weekend at the end of May.

I will get it finished eventually, or maybe break it down into parts to get it posted. As it is all about mobility issues I had, that even though everything was arranged for accessible, nobody seemed to care. Well most! 

But at the moment this morning I’m in so much pain! 

I had massive abdomen spasms last night, ones where it pulls the whole body up and holds it there until the muscles relax again. Then it happens over and over! If I could do these myself, my body would look great! 

Only I have no control over my body spasms, they are involuntary just the same as Dystonia. Though because I am diagnosed with Functional Movement Disorder, they tell me it is Functional Dystonia

I also have eye spasms (Blepharospasm), and Hemifacial Spasms. Plus I have Cervical Dystonia, all of which I have Botox injections for. I have had spasms in my left side back muscle, shoulder, arm and hand. These spasms started before any others, so how come they are not classed as Dystonia? Or my leg spasms, where you can even see the muscles moving as they spasm? 

Anyway, they say mostly Functional Dystonia. I get to a point I don’t care what they want to call it all, I just want looking after properly! 

My insides hurt so much today, my abdomen doesn’t get much of a work out anymore due to my disabilities. So last nights Involuntary Abdomen Spasms have left their memory, leaving me feeling in more pain than usual.

The International Symbol Of Access, Image from Wikipedia.

It may sound weird, but as a Chronic Pain Sufferer, you actually get used to your pains and find ways to deal with them. But the unexpected pains, additional pains, they are ones we are not used to so they hurt more.

Well, it’s going to be another hot sunny day here. I hope you all have nice weather where you are too.

As always, thanks for reading and take care X 

Thinking

This Tuesday believe it or not, I actually went out and bought myself a “Self Confidence” book.
My disorder has made me so low lately, that I have lost all self esteem and confidence.

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The constant spasming of my body and my leg pains. The looks from strangers. Even when strangers are being nice, holding doors as lovely as it is (and very much needed and appreciated) it still makes me feel small, not a full functioning person anymore.
Well, that of course is because I am not!

There is a very good poem I came across in the book I would like to share with you, I hope it brings a smile to your face as it did mine ๐Ÿ™‚

If you think you are beaten you are,
If you think you dare not, you don’t.
If you’d like to win but think you can’t,
It’s almost certain you won’t.

If you think you will lose, you’ve lost,
For out of the world you’ll find,
Success begins with a fellows will,
It’s all in the state of the mind.

If you think you’re outclassed you are,
You’ve got to think high to rise.
You’ve got to be sure of yourself,
Before you can ever win a prize.

Life’s battles don’t always go,
To the stronger or faster man.
But soon it late, the man who wins,
Is the man who thinks he can.

Walter D Wintle

Quite lovely isn’t it,and just makes you think and take stock of your life.

Enjoy x

Personal Independence Payment (PIP)

Information for all disabled people who claim benefits, and the new upcoming change to our DLA and Mobility benefits system payments with effect from 8th April 2013.

When will it effect you?

Claiming PIP
https://www.gov.uk/pip-checker
This is the link to check on when you may be effected by the new Personal Independence Payment (PIP) and when you can expect to have to reclaim for this instead of the old Disability Living Allowance (DLA) which is all changing this April 2013.

Here is the information given on the Government Website of what the rates are to be –
https://www.gov.uk/pip/what-youll-get

What youโ€™ll get
Personal Independence Payment (PIP) is paid every 4 weeks. Itโ€™s tax free and can be paid if youโ€™re in or out of work.

It is made up of 2 components (parts). Whether you get 1 or both of these depends on how your condition affects you.

Daily living component
Daily living component Weekly rate
Standard ยฃ53.00
Enhanced ยฃ79.15

Mobility component
Mobility component Weekly rate
Standard ยฃ21.00
Enhanced ยฃ55.25

STRESS – is it a main contributory factor?

Stress can have a massive impact on both a persons brain and body, I sufferer from a condition called Functional Movement Disorder.
This is a psychogenic neurological disorder, caused by past build up of life stresses that at a certain point made my brain in effect suddenly have a disconnection of the central nervous system.


It means now my brain does not send or receive signals to and from my body properly anymore, for the bodies movements to work correctly. My brain can misfire so make it move on its own giving me weird, odd movements out of my control, or does not move when I ask it to.

Stress is one of the factors in this disorder, and it is a little like Post Traumatic Stress Disorder.

We have to learn to have a life balance where we give ourselves a break from the daily stress that we all go through, and have to find a way to keep the balance right.

I know how hard that is believe me, but it is something that society needs to start to understand.

That people are not machines, we need rest and play as well as work.

There has always been the phrase around “Work, Rest & Play”.
Unfortunately it seems that now in the economic situation the world is in now, everybody is finding life more challenging to meet their bills. To put food into their families mouths, and to keep clothes on their kids back and a roof over their heads.

We don’t all need the latest gadgets, the new flat screen televisions, the latest craze or fashionable clothes. We just want to have a happy life, and I want to help people remember to live life with a smile.

STRESS we have to learn to get it under control and go back to living instead of just existing. X

Functional Movement Disorder

Check out the new leaflets & published information pages

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I have posted on a few leaflets / PDF’s, and some published neurological papers written by Doctors and Consultants.

They are in the drop down “Interesting Medical Papers & Information” tab.

There are some interesting papers if you want to read up on this disorder, and things related to the brain.

I will keep adding to these pages, when I get chance. As I believe sharing information can only help us to understand ourselves more, so therefore we can become more comfortable with our bodies and our movements.

Hope they help some of you ๐Ÿ™‚

Published Neurological Papers:
http://www.functionalmovementdisorder.com/interesting-medical-papers-information/information-leaflets/published-neurological-papers/

Information Leaflets:
http://www.functionalmovementdisorder.com/interesting-medical-papers-information/information-leaflets/

Happy reading ๐Ÿ™‚

Our Awareness Week Starts This Week! 😀


Let’s raise awareness through talking, and engaging with others. Show family, friends, groups, information or links about what Functional Movement Disorder symptoms are.
Let’s try to grow awareness of what we go through, of what we suffer.

1 in 3 people who are seen by Neurologists, are diagnosed with some form of Functional Disorder! That’s a lot of people, yet we are still swept under the carpet because they are not sure how to make us better.

As there are different forms of Functional Disorder, they all need treating on an individual basis.

So while we are trying our best to make ourselves better, let’s try to get more of the medical profession to understand our problems.

Awareness is what it’s all about!

Information Pages Set Up


Hi I set up the pages last night for the information, and out lining the symptoms that can come with Functional Movement Disorder.

You can just click on the page links above, or click the links on here below:

Link – Functional Movement Disorder – Starting To Be Explained

Link – What Symptoms Does This Disorder Include?

I hope these information pages help you, your family or carers, or if you are just looking for research.

I will give more definition, and details of what each symptom comes with over the following weeks.


Unexplained Psychological Illness Linked To Brain Abnormalities

A must read for any Psychogenic Disorder sufferers!

A very interesting piece in the Psych Central, regarding how the brain in psychological patients does actually change whilst having a psychogenic episode!

That the psychogenic function difference shows up on a PET Scan even whilst the patient is, or is not, having a psychogenic episode.

http://psychcentral.com/news/2013/02/27/unexplained-psychological-illness-linked-to-brain-abnormalities

Happy reading ๐Ÿ™‚

Welcome

Welcome to my site, I am a “Functional Movement Disorder” Sufferer.

I decided to set up this site to share any information and knowledge I have found, about this “very little known about” disorder.

*PLEASE NOTE THAT THIS SITE IS ALL MY OWN THOUGHTS AND INFORMATION I HAVE FOUND, PUT TOGETHER TO HELP OTHERS IN THEIR SEARCH FOR ANSWERS THE SAME AS MYSELF.

This site will grow slowly, as I gather together all the information I have already found. Along with the new information I find in my continued research, which I will put on in time.
___________________________________________________

Through researching for information on this disorder for myself, I found there to be very little out there to find.
I looked on the worldwide web, where there is information about what the movement conditions for this disorder are. Only I found nothing about the diagnosis process, or the following process of treatment and what is involved. What we as patients can expect to go through, and the walls that we constantly come up against.

The piles of forms and paperwork that we have to fill in, if we need to make claims from insurance companies, for DLA, for ESA, right through to applying for Blue Badges for disability parking, or concessionary passes etc.

The appointments we have to go through, and the sucession of follow up appointments. The different Doctors and Consultants we are required to see, and the tests we have to go through. Firstly to get to a diagnosis, then the following assessments for any claims we make. The refusals that you may have, and the following continued push to prove that your claim is your right. The ongoing battle against both your body fighting itself, and the battle to keep going through all the closed doors.
The total and utter resignation you may feel many a time, and the ongoing tiredness and fatigue.

I also trawled to a lot of bookshops, only to find that even the largest bookstores did not have any books on this condition. I even went to a main University bookstore, but to no avail.
I was also very surprised to find that it is not listed on the lists of Neurological Disorders on the Movement Disorder sites that I did find.

Interestingly, there seems to be a selection of names for the same disorder:

* Functional Movement Disorder
* Functional Neurological Disorder
* Functional Dissociative Disorder
* Dissociative Disorder
* Conversion Disorder
* Functional Neurological Dissociative Disorder
* Functional Neurological Movement Disorder
* Psychogenic Movement Disorder
* Functional (Psychogenic) Movement Disorder

All of the above diagnosis’ are in fact the same disorder, which can lead to confusion when left to look for information about the condition you have just been diagnosed with.

I hope that with shared knowledge, we can get this disorder more well-known about and so making the struggle for sufferers less, along with helping their families and carers to gain an understanding too.

Please feel free to get involved. You can comment, or you can contact me by email using the contact form.
Thank you.

My Story

I haven’t been at work since Monday 30th of January this year 2012. I had a sudden onset of head spasms, and other body spasms. I have gone downhill fast over the year. January my head spasms started. February my neck kept twisting and jerking sideways. March my legs started to go weak and wouldn’t …

View page »

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An Update On Me ;)

I can’t walk anymore without walking sticks, crutches, my wheeled walker or I also now have a mobility scooter. I have funny jerky movements, and can seem to have a tremor at times. My left leg jumps a lot, due to pulling in my abdomen, my hip or the calf muscle all spasming. My neck, …

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4 comments

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  1. Andrea

    Hi Julia yes it was the same one I was pointed to by my Neurology Consultant as well. It has a wealth of information all about the different symptoms and that come with this disorder.
    I have linked to it on the “Helpful Links” page ๐Ÿ™‚
    Unfortunately what I find it doesn’t do is go further, to give the understanding. To fill out the picture and consequences this disorder brings with it. I wanted more, to know the why and how. To find reasons, and information more than just on a medical level from one Dr who has an interest in the disorder. In fact, I was and still am dumbfounded that so few Drs have an interest in the disorder or know so little about it.
    My website is the journey from a patients view point, the diagnosis and time, years it can take. Through to the eventual start of treatment, the forms of treatment, and hopefully the outcomes that patients can look to in the future.
    I have been rather ill lately so I know my site is limited, but as many sites they take time to build and I hope it will get there eventually. With more information of the treatment and psychological journey, along with other interesting information I find that I feel may be of interest to share.
    I hope you find the site of some use to yourself also.
    Thank you for your comment ๐Ÿ™‚

  2. Julia

    Hey, have you had a look at neurosymptoms.org? It’s a website by a movement consultant neurologist and I found that very useful. My neurologist pointed me in the direction of it when he diagnosed me x

  3. Andrea

    Hi Nicola, I am so glad my site is helping you. Although I do need to just say, that I am like you a sufferer. Everything I put on this site is from my research and personal experience, I am not a medical person.
    I set this site up because there is little information for us to find, and I wanted to explain our disorder in as easy a way as I can. Without all the medical terms that can be hard to understand, and I want to help others like me.
    We as patients with this disorder, start to become specialists in it by going through it and all the information we find along our journey. We end up knowing more than our local doctors, but we are not doctors just sufferers that begin to know all about our disorder.
    I hope your appointment goes well, and that your day is a good one.
    Thanks for your lovely comment ๐Ÿ˜€

  4. Nicola

    Fab site Andrea! You site is so good I’m taking a print out to my Gp this week of all the symptoms. He’s very understanding but he’s learning about Fnd like I am. I look forward to hearing of any updates you have & I will definitely let you know if any treatment I have seems to help & of news I may find through my investigations into this mad, mad condition! ๐Ÿ™‚ xx

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Aww I Hurt

Image from Google pictures. I’ve been busy all week, trying to write about my weekend away in London over the Bank Holiday weekend at the end of May. I will get it finished eventually, or maybe break it down into parts to get it posted. As it is all about mobility issues I had, that …

Read more

FMD What’s the difference between the overlapping movement disorders?ย 

Functional Movement Disorder has many overlapping symptoms of other movement disorders, such as Dystonia, MS, Parkinson’s, Lyme Disease, Lupus, Chorea, and many, many other movement disorders.  The difference being that whilst these others are an organic brain disorder, then some may possibly shorten life. The functional movement disorder is not, it is classed as psychological …

Read more

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