STRESS – is it a main contributory factor?

Stress can have a massive impact on both a persons brain and body, I sufferer from a condition called Functional Movement Disorder.
This is a psychogenic neurological disorder, caused by past build up of life stresses that at a certain point made my brain in effect suddenly have a disconnection of the central nervous system.

It means now my brain does not send or receive signals to and from my body properly anymore, for the bodies movements to work correctly. My brain can misfire so make it move on its own giving me weird, odd movements out of my control, or does not move when I ask it to.

Stress is one of the factors in this disorder, and it is a little like Post Traumatic Stress Disorder.

We have to learn to have a life balance where we give ourselves a break from the daily stress that we all go through, and have to find a way to keep the balance right.

I know how hard that is believe me, but it is something that society needs to start to understand.

That people are not machines, we need rest and play as well as work.

There has always been the phrase around “Work, Rest & Play”.
Unfortunately it seems that now in the economic situation the world is in now, everybody is finding life more challenging to meet their bills. To put food into their families mouths, and to keep clothes on their kids back and a roof over their heads.

We don’t all need the latest gadgets, the new flat screen televisions, the latest craze or fashionable clothes. We just want to have a happy life, and I want to help people remember to live life with a smile.

STRESS we have to learn to get it under control and go back to living instead of just existing. X

Functional Movement Disorder

Connectivity Is Power

(The above is a picture of Neurons connecting to other Neurons)

    I have set up some forums for anyone that is interested in wanting to post questions, or chat. Also one for if anyone has information, or diagrams they feel they would like to share, that may be of use to others with our little known about disorder.

    The quote below is one I posted on my blog a long time ago, but seems very fitting now 🙂

    Connectivity is power,
    Power is electric,
    Electricity is vital,
    Vitally is exciting,
    Excitement makes people talk and connect,
    Connectivity is power,
    Power is electric…..

    Copyright © 2013 Dystonia And Functional Movement Disorder Sufferer Quote – Trying to raise awareness of Movement Disorders

I Am Broken

This is a blog post I just added at:
I don’t blog as often now, it’s just going back over old ground. I only blog now, when I really feel what I write is worth sharing.
I hope my words may resonate with others, and make you feel less alone. Andrea x

As I lay with my arms outstretched, crouched at the side of the bed.

My head down and tears fully flowing, with me sobbing and not knowing how to stop.

I am a broken woman!

I still have flashbacks, I still relive moments from my past.

I want my girls to hold and hug close, and never let them go. He hurt us too much, way too much.

Shock, pain, hurtful late night calls. Constant notes through the door, hounding me to meet up. After what he did!? 

The suicide threats he made, and in front of our girls!!!! Him asking to be past a knife to slit his wrists.

My daughters turmoils, the total and utter disruption to their lives. 

The total break of my marriage of 21 years. 

The following mess and trying to hold on and keep going. All that followed, the house, a roof over our heads. Trying to put food in our stomachs, how I deprived myself to feed my daughter, 

Holding on to a job where I was being harrassed by my boss, all whilst going through my troubled home life.

The divorce proceedings I set in place, and stood my ground. Getting some self esteem back, finding me again. 

FMD and PTSD are really, one and the same. I go through similar things.

Times like this I can’t stop crying, I just want out.

But my saving grace, a wonderful man I met who whirled me off my feet. Gave be confidence and showed me how to love again, made me a person who could feel again after I had shut down.

Only I’m not a full person anymore, I’m missing  bits. I’m broken, my brain has memory problems mostly short term. 

But there are things that happened during my marriage break up, that I have no memory of.

Things that have happened whilst with my new partner, I have no memory of.

It’s the scariest thing, not knowing part of your life but others do.

It’s the scariest thing, having flash backs suddenly out of the blue. That interrupt and distort your day, change your feelings. Make you go so low, it’s a struggle to keep getting back up.

It’s the scariest thing, having your body suddenly turn against you. Start breaking down, not moving properly. Not moving how you ask it, or moving without you asking!

It’s the scariest thing, living in my world. Every day, for the rest of my life!

I am hurt, still. 

I am broken, always.

I don’t really know who I am anymore

I just had to blurt this and get it out. 

Real life is hard, nothing is all roses. Not in my world.  

But I love all my family dearly, my girls especially. They make me a proud Mum, they have moved on and are now living their lives.

My elder sister I have to thank for looking after me so well in the first weeks, with no thought to disrupting her own life and work. She stepped out and caught me as I fell, whilst cradling my girls too. Thank you sis with all my heart xxx

Me I still struggle, and probably always will. Becoming physically and I guess mentally disabled, from something that happened in your life, to change the way your brain works. Well, it’s still very hard to grasp. 

So yes, I have my break down days. Today just happens to be one of them, and I felt I needed to set it free.

Maybe now I can move on?

You only have to look at the tags to see all the problems, and disorders I live with. So only time will tell.

Thanks for reading as always, and take care X.

Never a Give Up!

Check out my new post on my blog at:

Where I talk about not giving up on fighting to have all your symptoms checked, and not to let the Drs tell you everything is Functional and leave you to just live with the problems.

If you believe there is definitely something wrong, and you have not had any test or scan for the illness. Then push forward, until you get checked because you just never know unless it’s checked out.

I know, I’ve been fighting for my different symptoms for years because yes even I do not believe everything I have is Functional.

They may continue to say that my diagnosed Dystonia is now suddenly probably Functional Dystonia! 

But suddenly at last, though I’ve been having Botox injections since a Feb 2010 for my Blepharospasm and Hemifacial Spasms, I eventually got checked by my Neuro Consultant and got the go ahead to have Botox in my neck! This was at my last appointment, and it made such an improvement to my head, and my neck was holding up better. Though I am ready for my next injections now!

They may continue to say my seizures are Non Epileptic, though whilst having an eye test by my optician last week say he thought I had Epilepsy from the way I reacted to the test makes me wonder. Along with the radiographer who believed I was an epileptic, after having a seizure during my head and neck MRI scans last year, my partner said I am told I have NEAD but she said that was not like a non epileptic! So I don’t think you always need the electrical EEG test, to diagnose epilepsy if the signs are all there. It is annoying that we are left with the NEAD diagnosis, just because it can’t be caught on screen.

But they can no longer keep saying my back pain, leg, feet, arm and hand pains, or the pins and needles and numbness are Functional. Now I have a printed out report of my MRI scan, plus a copy of the letter referring me to be seen by a Neurosurgeon. I have proof it’s not all Functional, it makes me glad in one way but sad on the other hand as I have some serious back problems.

You can read fully in my blog post, about all my newly found out back problems. Just click the link at the top of the page.

Thanks as always for reading folks, and take care of yourself and your family x

Functional Movement Disorder



  This disorder has such a diverse mix of symptoms, that it is incredibly hard to label it properly. 

Functional movement disorder, functional disorder, neurological disorder, conversion disorder, functional neurological disorder, movement disorder, involuntary muscle spasms, muscle spasms, pain, chronic pain disorder, chronic pain, non epileptic attack disorder, nead, fmd, fnd, non epileptic siezures, nes, epilepsy, epileptic seizures, seizures, memory loss, loss of co-ordination, balance problems, gait problems, chorea, ms, parkinsons, dystonia, functional dystonia, focal dystonia, blepharospasm, eye problems, facial spasms, jaw spasms, cervical dystonia, cd, neck spasms, muscle twiisting,  disability, disabilities, disabled, paralysis, partial paralysis, sleep paralysis, sleep aponea, sleep disorder, back pain, myoclonus spasms, and more!

There are so many symptoms, so many names, how can it all be labelled under one Disorder?

I believe we should be treated for each individual symptom, and the clumped together disorder name label actually taken away! 

That way patients will get treated for each symptom, rather than some that are left with just a label over their head and doctors who have no clue how to treat them.

I honestly believe there are way too many symptoms, just to be all put under the same label of Functional Disorder!

Thanks as always for reading 🙂 



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Check out the new leaflets & published information pages

Information is key!20130912-211129.jpg

I have posted on a few leaflets / PDF’s, and some published neurological papers written by Doctors and Consultants.

They are in the drop down “Interesting Medical Papers & Information” tab.

There are some interesting papers if you want to read up on this disorder, and things related to the brain.

I will keep adding to these pages, when I get chance. As I believe sharing information can only help us to understand ourselves more, so therefore we can become more comfortable with our bodies and our movements.

Hope they help some of you 🙂

Published Neurological Papers:

Information Leaflets:

Happy reading 🙂

New Stories Added!


Please check out all the new stories added, of some more extremely brave people who have chosen to share their stories in the aid to help raise more awareness of our disorder.

I would like to personally thank, each and every person who has and is, sharing their stories.


Andrea X

Date of UK driving licence law announced

Friday 8 March is the date when the new driving regulations for people with epilepsy will become law.

The changes are on the Epilepsy website, see the link below for all further information:

This is very important information for any drivers, please check it out.

I hope this information helps 🙂

Constant Involuntary Muscle Spasm!


I implore and question any psychologist or psychiatrist , why do you believe “Talking Therapy” can help Functional Movement Disorder?

My leg has been in a constant involuntary muscle spasm for over five hours now!

I am not sure how a person is supposed to stay positive when they live in constant pain.

With the many symptoms this disorder has, how can talking erase all the movements?

I am open to any discussion, please feel free to leave a comment.

All help will be gladly received.

The Start Of Functional Movement Disorder Awareness Week

As the start of our awareness week is here again, we need to push our awareness as much as we can,

The more we share, the more people see, the more questions are asked, and the more understanding of our rare movement disorder is known and learnt about.


Share, because we care. This disorder can strike anyone down, at any time. We live a life of stress, pushing, and ongoing hardship and upset. 

Things from our pasts that we block out, stress that we pretend hasn’t happened and pushed aside, boxed away. But we all know things can catch you unexpectedly at any time, a flash from the past that upsets you when remembered. I guess it can be just a little like that, but this movement disorder is too hard to explain in any east way.

Read the stories of the people who live with it, read my story as I’ve progressed. Learn and share the information, even mention it in passing the next time you see your Drs. Let’s raise the awareness, of Functional Movement Disorder.

Thank you x


Welcome to my site, I am a “Functional Movement Disorder” Sufferer.

I decided to set up this site to share any information and knowledge I have found, about this “very little known about” disorder.


This site will grow slowly, as I gather together all the information I have already found. Along with the new information I find in my continued research, which I will put on in time.

Through researching for information on this disorder for myself, I found there to be very little out there to find.
I looked on the worldwide web, where there is information about what the movement conditions for this disorder are. Only I found nothing about the diagnosis process, or the following process of treatment and what is involved. What we as patients can expect to go through, and the walls that we constantly come up against.

The piles of forms and paperwork that we have to fill in, if we need to make claims from insurance companies, for DLA, for ESA, right through to applying for Blue Badges for disability parking, or concessionary passes etc.

The appointments we have to go through, and the sucession of follow up appointments. The different Doctors and Consultants we are required to see, and the tests we have to go through. Firstly to get to a diagnosis, then the following assessments for any claims we make. The refusals that you may have, and the following continued push to prove that your claim is your right. The ongoing battle against both your body fighting itself, and the battle to keep going through all the closed doors.
The total and utter resignation you may feel many a time, and the ongoing tiredness and fatigue.

I also trawled to a lot of bookshops, only to find that even the largest bookstores did not have any books on this condition. I even went to a main University bookstore, but to no avail.
I was also very surprised to find that it is not listed on the lists of Neurological Disorders on the Movement Disorder sites that I did find.

Interestingly, there seems to be a selection of names for the same disorder:

* Functional Movement Disorder
* Functional Neurological Disorder
* Functional Dissociative Disorder
* Dissociative Disorder
* Conversion Disorder
* Functional Neurological Dissociative Disorder
* Functional Neurological Movement Disorder
* Psychogenic Movement Disorder
* Functional (Psychogenic) Movement Disorder

All of the above diagnosis’ are in fact the same disorder, which can lead to confusion when left to look for information about the condition you have just been diagnosed with.

I hope that with shared knowledge, we can get this disorder more well-known about and so making the struggle for sufferers less, along with helping their families and carers to gain an understanding too.

Please feel free to get involved. You can comment, or you can contact me by email using the contact form.
Thank you.

My Story

I haven’t been at work since Monday 30th of January this year 2012. I had a sudden onset of head spasms, and other body spasms. I have gone downhill fast over the year. January my head spasms started. February my neck kept twisting and jerking sideways. March my legs started to go weak and wouldn’t …

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An Update On Me ;)

I can’t walk anymore without walking sticks, crutches, my wheeled walker or I also now have a mobility scooter. I have funny jerky movements, and can seem to have a tremor at times. My left leg jumps a lot, due to pulling in my abdomen, my hip or the calf muscle all spasming. My neck, …

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  1. Andrea

    Hi Julia yes it was the same one I was pointed to by my Neurology Consultant as well. It has a wealth of information all about the different symptoms and that come with this disorder.
    I have linked to it on the “Helpful Links” page 🙂
    Unfortunately what I find it doesn’t do is go further, to give the understanding. To fill out the picture and consequences this disorder brings with it. I wanted more, to know the why and how. To find reasons, and information more than just on a medical level from one Dr who has an interest in the disorder. In fact, I was and still am dumbfounded that so few Drs have an interest in the disorder or know so little about it.
    My website is the journey from a patients view point, the diagnosis and time, years it can take. Through to the eventual start of treatment, the forms of treatment, and hopefully the outcomes that patients can look to in the future.
    I have been rather ill lately so I know my site is limited, but as many sites they take time to build and I hope it will get there eventually. With more information of the treatment and psychological journey, along with other interesting information I find that I feel may be of interest to share.
    I hope you find the site of some use to yourself also.
    Thank you for your comment 🙂

  2. Julia

    Hey, have you had a look at It’s a website by a movement consultant neurologist and I found that very useful. My neurologist pointed me in the direction of it when he diagnosed me x

  3. Andrea

    Hi Nicola, I am so glad my site is helping you. Although I do need to just say, that I am like you a sufferer. Everything I put on this site is from my research and personal experience, I am not a medical person.
    I set this site up because there is little information for us to find, and I wanted to explain our disorder in as easy a way as I can. Without all the medical terms that can be hard to understand, and I want to help others like me.
    We as patients with this disorder, start to become specialists in it by going through it and all the information we find along our journey. We end up knowing more than our local doctors, but we are not doctors just sufferers that begin to know all about our disorder.
    I hope your appointment goes well, and that your day is a good one.
    Thanks for your lovely comment 😀

  4. Nicola

    Fab site Andrea! You site is so good I’m taking a print out to my Gp this week of all the symptoms. He’s very understanding but he’s learning about Fnd like I am. I look forward to hearing of any updates you have & I will definitely let you know if any treatment I have seems to help & of news I may find through my investigations into this mad, mad condition! 🙂 xx

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Aww I Hurt

Image from Google pictures. I’ve been busy all week, trying to write about my weekend away in London over the Bank Holiday weekend at the end of May. I will get it finished eventually, or maybe break it down into parts to get it posted. As it is all about mobility issues I had, that …

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FMD What’s the difference between the overlapping movement disorders? 

Functional Movement Disorder has many overlapping symptoms of other movement disorders, such as Dystonia, MS, Parkinson’s, Lyme Disease, Lupus, Chorea, and many, many other movement disorders.  The difference being that whilst these others are an organic brain disorder, then some may possibly shorten life. The functional movement disorder is not, it is classed as psychological …

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