This morning I woke with a fully numb left arm, painful calf muscles, pain in the top front of my forehead, and a very heavy head which comes from the middle left side of my head which sometimes feels like it is being pulled downwards toward and through my neck down my back!
It all makes me so very tired, my body is constantly fighting itself and the tiredness is the body trying to repair itself and regenerate.
Does anyone else have the problems with their head like me?
My Drs still don’t know what it is, but think it relates to my seizures?
Last week I had a sleep study where I was filmed and all wired up, with six wires on my head, three on my forehead, two each side of my face, one on my chin, then a wire down my leg.
Lastly I had a strap put around my chest, this was to get readings of my chest rate and breathing.
My sleep study is primarily to check for Sleep Apnoea, but also to check electrical impulses in my head and spasms in my body.
There are other things too, but I’m waiting to hear from the Consultants as I don’t want to get my hopes up.
This disorder certainly is draining, and you never know from one day to the next what your body is going to throw at you. Functional movement disorder is a neurological disorder, has so many symptoms, and I have a lot of them.
Though I am still fighting to make sure I do not also have an organic part to my movements, that I don’t only have a psychological disorder. As I’ve had spasms for so many years, years before what is thought to have been the psychological reason to my illness.
I will still continue to research this very weird disorder, a disorder that is very similar to PTSD.
Functional Movement Disorder needs so much more awareness!