This week I have a lot going on, so I have to somehow find the energy and strength to both get up early, and stay going!
Unfortunately yesterday I had problems with my blog “dystoniasuffer.com” (Dystonia & Functional Movement Disorder Sufferer). I found myself unable to get into my site as I could not for the life of me remember my passwords, though to be honest I have had it before where I have input my password and it has told me it is wrong only for me to input the same again and it work!
I thought I had backed up all my database etc, and then proceeded to delete to start over agsain. But I seem to be having problems getting it back up, and am now unsure if it will even be done.
Gutted doesn’t cover it, I started my blog on 16th February 2012. That’s a lot of pages, and hundreds of posts of information all lost if my web hosts are unable to help me and my partner bring it back. My poor partner has been trying his best to help my since last night, but fear I may have not backed up everything I needed to 🙁
So I hope you do not mind, if I do a few blog posts here. After all, it is living through the eyes of a sufferer.
Wednesday I am going to become a Nanna for the second time, whoop whoop! My eldest daughter is having her little girl by a cesearean section, her baby has been stuck across ways and breach for the last approximately four weeks.
We are all very excited, it should have all happened today but there was emergencies so she got moved along which is not the news you want to hear when you have been waiting so long!
Though luckily, I am not feeling too well today. I know we never feel well with our disorder, but as you my fellow sufferers or carers, or family members all know, we still can feel worse than our normal daily issues we have to deal with.
I am just so very tired today, I ache terribly and my head feels off kilter and my scalp feels sore. My joints hurt really bad, and my back (as normal now) is causing me a lot of pain. I have taken three lots of morphine so far today, and that is out of my allowed four doses. So maybe Wednesday I will be be having a better day. whatever happens, I will drag myself up and out and be there for her and my new Granddaughter 🙂
On Thursday I am eventually getting help for my back pains, I am going to hospital to the surgery department for 8 o’clock in the morning.
I will be having a local anaestetic injection, and the steriod epidural injection. To hopefully be given the pain relief, I have waited many months for.
I was told last Monday when I saw the head man my Neurosugeon Mr Thorne, not to get my hopes up. Which was not what I expected, and made me feel slightly dissapointed. I had expected this injection to help, but I am now informed that it is possible it may not work as I have so many problems going on! Though if I am lucky it may help, and give some relief from the pains but that I will very likely still need to use the morphine alongside.
If however I am very lucky, the injection may work and give me the pain relief in my back and hopefully keep the relief going for a few months.
At the moment it is all ifs, buts and maybes. I just have to keep hope, and believe it WILL work.
By this timme next week, I might be back to using my walker instead of having to depend on mobility scooters all the time. Start to get out and become a bit more mobile again! Please 🙂
Thanks as always for reading folks, catch you later x