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Constant Involuntary Muscle Spasm!

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I implore and question any psychologist or psychiatrist , why do you believe “Talking Therapy” can help Functional Movement Disorder?

My leg has been in a constant involuntary muscle spasm for over five hours now!

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I am not sure how a person is supposed to stay positive when they live in constant pain.

With the many symptoms this disorder has, how can talking erase all the movements?

I am open to any discussion, please feel free to leave a comment.

All help will be gladly received.

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7 comments

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  1. Andrea

    Hi Bonnie,
    Sorry for such a late reply but it takes time to get to answering when ill. Also get lots of idiot replays I have to go through and delete, very annoying!!!
    Yes my legs are the same, very heavy to lift like they are weighed down.
    I get the involuntary muscle spasms in both my calfs, this means my muscles are working even when I am not walking or standing. So my legs are always tired, and extremely weak. Too weak to hold me up on my own now, so I have walking sticks, crutches, a walker and a mobility scooter to help me get about.
    I get jerks in my left leg, it lifts at times on its own. I take diazepam as muscle relaxants, but they don’t seem to work much anymore. I also rub a muscle gel in that I have prescribed from my doctors, called Piroxicam Gel. It helps to numb some of the inflammation in the muscle pains.
    You should ask your Dr for some help.
    Best wishes 🙂

  2. Andrea

    Hi Jen
    Sorry only just answering, but I don’t get much chance due to being ill as you will appreciate. Yes I agree, I originally thought it was all dystonia but then I started with attacks too. So I now am diagnosed as Functional Movement Disorder, Hemifacial Spasm, Chronic Pain Syndrome, Sleep Disturbance and Non Epileptic Attack Disorder too.
    I am under a neurologist and a neuropsychologist, they recently wrote that I may have an underlying tissue disorder that has not yet been checked. I guess I will have to wait and see 🙁 x

  3. Jen

    Your symptoms sound much more like dystonia if you are having spasms like this. “Functional disorder” or “conversion disorder” or whatever docs want to call it when they are blaming you or calling it a psych issue does not recognize that what you have is a neurological movement disorder namely dystonia or paroxysmal dyskinesia. If your symptoms are not improving and you are having sustained dystonic contractions and psych therapy is not helping then you should be seen and treated by a neurologist. If you have symptoms in other body systems you may have a metabolic disorder or another overlying disorder causing the dystonia. I have similar symptoms caused by a genetic mitochondrial disease. It causes several symtoms affecting many organ systems including my GI tract and nervous system. I have generalized dystonia and dystonic attacks. I personally think that “functional disorder” or “conversion disorder” is a cop out diagnosis when a physician is unfamiliar with symptoms. It is a disservice to the patient.

  4. Bonnie

    I can relate to your frustration. I have had a functional moverment disorder for 7 years now. Myoclonus jerking it what they are telling me it is. My legs jerk out several time during the day, but not when I am sleeping. It affects my arms as well. No medication can control it. My legs gets very tired, even when they do not kick. They are very achy. It feels as if someone is sitting on them and you try to lift them.
    If this is something anyone is having similar symptons, I would like to hear from you.

  5. Jo Ann Landon

    Dear Andrea,
    I hear your frustration. Have you ever explored Myofascial Unwinding, as taught by John E. Barnes,PT? You-tube has some great videos that you might find interesting, as well as his book: Healing Ancient Wounds, the Renegade’s Wisdom.
    Best wishes with your search.
    Jo Ann

  6. Andrea

    Thank you Jo,
    I’m not sure it totally answers my questions, but I understand what you are saying.
    Trouble is as mine is functional, and we can find no actual reason or definite triggers. Then how can I stop my body having the spasms and muscle contractions, or my get my seizures and paralysis under control?
    My psychologist says I still have a way to go, although he is pleased with the progress of understanding and acceptance that I have made.
    My brain still seems to be processing whatever it was that made it break, ad I get worse rather than better.
    Thank you for your comment, it is much appreciated 🙂

  7. Jo Ann Landon

    I am a studious reflexologist who has been studying the connection of traumatic memories…and touch after a few clients with FMD or trauma. If we want to change the neural circuitry that is evident in iconic (image based) memories [different than semantic(word based) memories/trauma} It can be done two ways…talk or touch. Iconic memories must be felt emotionally, then transferred into words(talk) in order to then process and eliminate their effect. Or, touch will access the feelings and be directly dealt with. As a Therapeutic Massage student I am now preparing myself to work with touch as a way to help anyone with dystonia. Trauma even if it is small and long standing can have the same effect as a major event and can effect the brain that then effects the body. I hope this helps answer your question.

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