Helpful Links

My Personal Blog
I used to write on daily which helped me so much for the first year to get it all out of my system, but now I don’t post as much but while it continues to help others I will continue sharing my problems for other sufferers and family or friends to understand a bit more.
http://www.dystoniasufferer.com/

Carers and disability benefits – including PIP (old DLA) – GOV.UK
This link gives a full list of links, for all sorts of benefits you may find of help.
https://www.gov.uk/browse/benefits/disability


Citizens Advice Bureau – the charity for your community
This link will help you find your nearest bureau. They offer help with any problems you may have by providing free, independent and confidential advice, and by influencing policymakers, or help with form filling.
http://www.citizensadvice.org.uk/

The Disability Law Service
Run by and for disabled people DLS is a registered national charity. They have provided high quality information and advice to disabled and Deaf people for over 30 years
http://www.dls.org.uk/

A Neurological Movement Disorder Site
Run by a Doctor Stone whose main interest is in this disorder.
www.neurosymptoms.org

Neuronauts Website
A site mostly about Dystonia, but covers other neurological disorders too. Plus you will find links to both their Facebook page, and Twitter feed.
http://www.neuronautsnow.org/home.html

Non-Epileptic Attacks
Run by a group of healthcare professionals, interested in developing effective treatments for non-epileptic attacks. The group consists of Neurologists, Psychologists and Psychotherapists. www.nonepilepticattacks.info

The Dystonia Society UK
Providing support, advocacy and information. www.dystonia.org.uk

Personal Independence Payment (PIP)

Information for all disabled people who claim benefits, and the new upcoming change to our DLA and Mobility benefits system payments with effect from 8th April 2013. When will it effect you? Claiming PIP www.gov.uk/pip-checker This is the link to check on when you may be effected by the new Personal Independence Payment (PIP) and …

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