Gabapentin Tablets To Blame?

I haven’t been well since changing my tablets to Gabapentin, my increased head attacks and seizures, my breathing problems, and pretty much the rest of my body.

I did a bit of research, and am now questioning the Gabapentin tablets being given to me as a Non Epileptic sufferer. As these tablets seem more aimed at actual epileptics, as even noted in the BNF (British National Formulary) the publication which aims to provide prescribers, pharmacists and other healthcare professionals with sound up-to-date information about the use of medicines.

I have done a full post in the information drop down menu.

I hope this information may be of help to others.

The Start Of Functional Movement Disorder Awareness Week

As the start of our awareness week is here again, we need to push our awareness as much as we can,

The more we share, the more people see, the more questions are asked, and the more understanding of our rare movement disorder is known and learnt about.


Share, because we care. This disorder can strike anyone down, at any time. We live a life of stress, pushing, and ongoing hardship and upset. 

Things from our pasts that we block out, stress that we pretend hasn’t happened and pushed aside, boxed away. But we all know things can catch you unexpectedly at any time, a flash from the past that upsets you when remembered. I guess it can be just a little like that, but this movement disorder is too hard to explain in any east way.

Read the stories of the people who live with it, read my story as I’ve progressed. Learn and share the information, even mention it in passing the next time you see your Drs. Let’s raise the awareness, of Functional Movement Disorder.

Thank you x

Anaesthetist Appointment Today! :(

Check out my personal daily blog, today I am off to see the anaesthetist.

Not looking forward to any of it 🙁

Hope you all have a good day folks, and take care of yourselves 🙂

Our Awareness Week Starts This Week! 😀

Let’s raise awareness through talking, and engaging with others. Show family, friends, groups, information or links about what Functional Movement Disorder symptoms are.
Let’s try to grow awareness of what we go through, of what we suffer.

1 in 3 people who are seen by Neurologists, are diagnosed with some form of Functional Disorder! That’s a lot of people, yet we are still swept under the carpet because they are not sure how to make us better.

As there are different forms of Functional Disorder, they all need treating on an individual basis.

So while we are trying our best to make ourselves better, let’s try to get more of the medical profession to understand our problems.

Awareness is what it’s all about!

New Stories Added!


Please check out all the new stories added, of some more extremely brave people who have chosen to share their stories in the aid to help raise more awareness of our disorder.

I would like to personally thank, each and every person who has and is, sharing their stories.


Andrea X

More About Me & Living With Functional Movement Disorder

I have functional movement disorder, a neurological movement disorder where my central nervous system has at some time in the past broken. I have a disconnection, so my brain no longer sends or receives the signals properly anymore for my body movements.

I have lots of overlapping symptoms from other movement disorders, such as MS, Parkinson’s, ME, Fibromyalgia, Chorea, Dystonia, CRPS, Migraines, Athritis, and others too.

I wake every day in pain, and with my hands curled, my arms and elbow joints in agony. My legs in pain, and now my feet (mostly my left foot) in cramp. So I have tablets in a tub ready on, my bedside table to take immediately I awake.
I then rub muscle gel into all my body areas that hurt and my joints.

Along with all this I also have non epileptic attacks and seizures. I also have the drop attacks.
In fact, my body seems so greedy as if it wants to have a bit of every ailment going!

It is very hard going, and this is my life every day for the rest of my life.

My Neurology Consultant says I will have it for life, but that it may wax and wane. So I may have good days and bad days, but will never be fully physically fit again.

My Neuro a psychologist is of the same train of thought, although he is trying to help me get my head attacks and pains a little better (but with no promises!). Unfortunately he says I will have to learn to live with the rest of my movement problems.

Favourite saying – learn to live,with your abilities, rather than your disabilities!
A good saying I think 🙂

I try my hardest to stay chipper, to be the funny happy person I used to be before I got all this.
You see this time last year, I was still fine. I could still walk, I could still dance. I still had a life.
Now I live day to day, and on some of those days, I have to live hour to hour. It all depends on my attacks, and how my body decides to mess with my mind!

You see there is nothing wrong with my mind, I can think just fine. It is my brain that is broken, the machine, the cogs, that make my body work.

I hate that I now feel trapped in a body, that I no longer have real control over.

Thanks for reading 🙂

Antiphospholipid Blood Test

I was checked for this Antiphospholipid blood test , right at the beginning of my becoming ill. It came back clear, but I fit it in many ways but not all.

For anyone interested in reading more, here is a link to information regarding the testing and how it effects the body’s’ autoimmune system.

It makes for interesting reading, and when I had my test done I was a bit scared as I had no idea what they were looking for.
So if any one is going for this test, this will give you an advance insight.
Apparently it can cause blood clots, therefore giving strokes. Or the clots catching in areas of the body, such as the calf (where I get a lot of pain). Also making the body have weird movements, oh it all sounds so familiar.

So I am lucky (or am I?) as I do not have this as my test showed. So I am stuck with my weird movements, from my Functional Movement Disorder. A neurological disorder effecting my central nervous system.

How long have you / or the person you care for, had Functional Movement Disorder?

How long have you / or the person you care for, had Functional Movement Disorder?

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Did You Know??

The Brain is made up of a Hundred Billion Neurons?

All those neurons fire chemical responses to one another, sending requests for all our body movements.

The brain is the most fascinating part of the body, the one part we will probably never ever fully understand.

Functional Movement Disorder, is one of the one things that may never be understood.
Why the brain can suddenly have a disconnection in its central nervous system, why it no longer sends the brain signals properly anymore from one set of neurons.

How can those one set out of the hundred billion, ever be found? Ever be fixed?

Simple answer, they cannot. The brain is a wonderful thing though which has a life and existence unknown to us, as it can find its own way of repairing or going around and fixing certain problems all on its own.
But only for certain brain problems?


This is what is called Brain Plasticity, where the brain in effect rewires itself.
This refers to changes in the neural pathways and synapses, which can have cellular changes and makes new brain pathways for the brain to try to learn to work again.

But hey, this is all rather involved! So we will talk about this another time.
Or you can check it out yourself in the meantime 🙂


Welcome to my site, I am a “Functional Movement Disorder” Sufferer.

I decided to set up this site to share any information and knowledge I have found, about this “very little known about” disorder.


This site will grow slowly, as I gather together all the information I have already found. Along with the new information I find in my continued research, which I will put on in time.

Through researching for information on this disorder for myself, I found there to be very little out there to find.
I looked on the worldwide web, where there is information about what the movement conditions for this disorder are. Only I found nothing about the diagnosis process, or the following process of treatment and what is involved. What we as patients can expect to go through, and the walls that we constantly come up against.

The piles of forms and paperwork that we have to fill in, if we need to make claims from insurance companies, for DLA, for ESA, right through to applying for Blue Badges for disability parking, or concessionary passes etc.

The appointments we have to go through, and the sucession of follow up appointments. The different Doctors and Consultants we are required to see, and the tests we have to go through. Firstly to get to a diagnosis, then the following assessments for any claims we make. The refusals that you may have, and the following continued push to prove that your claim is your right. The ongoing battle against both your body fighting itself, and the battle to keep going through all the closed doors.
The total and utter resignation you may feel many a time, and the ongoing tiredness and fatigue.

I also trawled to a lot of bookshops, only to find that even the largest bookstores did not have any books on this condition. I even went to a main University bookstore, but to no avail.
I was also very surprised to find that it is not listed on the lists of Neurological Disorders on the Movement Disorder sites that I did find.

Interestingly, there seems to be a selection of names for the same disorder:

* Functional Movement Disorder
* Functional Neurological Disorder
* Functional Dissociative Disorder
* Dissociative Disorder
* Conversion Disorder
* Functional Neurological Dissociative Disorder
* Functional Neurological Movement Disorder
* Psychogenic Movement Disorder
* Functional (Psychogenic) Movement Disorder

All of the above diagnosis’ are in fact the same disorder, which can lead to confusion when left to look for information about the condition you have just been diagnosed with.

I hope that with shared knowledge, we can get this disorder more well-known about and so making the struggle for sufferers less, along with helping their families and carers to gain an understanding too.

Please feel free to get involved. You can comment, or you can contact me by email using the contact form.
Thank you.

My Story

I haven’t been at work since Monday 30th of January this year 2012. I had a sudden onset of head spasms, and other body spasms. I have gone downhill fast over the year. January my head spasms started. February my neck kept twisting and jerking sideways. March my legs started to go weak and wouldn’t …

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An Update On Me ;)

I can’t walk anymore without walking sticks, crutches, my wheeled walker or I also now have a mobility scooter. I have funny jerky movements, and can seem to have a tremor at times. My left leg jumps a lot, due to pulling in my abdomen, my hip or the calf muscle all spasming. My neck, …

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  1. Andrea

    Hi Julia yes it was the same one I was pointed to by my Neurology Consultant as well. It has a wealth of information all about the different symptoms and that come with this disorder.
    I have linked to it on the “Helpful Links” page 🙂
    Unfortunately what I find it doesn’t do is go further, to give the understanding. To fill out the picture and consequences this disorder brings with it. I wanted more, to know the why and how. To find reasons, and information more than just on a medical level from one Dr who has an interest in the disorder. In fact, I was and still am dumbfounded that so few Drs have an interest in the disorder or know so little about it.
    My website is the journey from a patients view point, the diagnosis and time, years it can take. Through to the eventual start of treatment, the forms of treatment, and hopefully the outcomes that patients can look to in the future.
    I have been rather ill lately so I know my site is limited, but as many sites they take time to build and I hope it will get there eventually. With more information of the treatment and psychological journey, along with other interesting information I find that I feel may be of interest to share.
    I hope you find the site of some use to yourself also.
    Thank you for your comment 🙂

  2. Julia

    Hey, have you had a look at It’s a website by a movement consultant neurologist and I found that very useful. My neurologist pointed me in the direction of it when he diagnosed me x

  3. Andrea

    Hi Nicola, I am so glad my site is helping you. Although I do need to just say, that I am like you a sufferer. Everything I put on this site is from my research and personal experience, I am not a medical person.
    I set this site up because there is little information for us to find, and I wanted to explain our disorder in as easy a way as I can. Without all the medical terms that can be hard to understand, and I want to help others like me.
    We as patients with this disorder, start to become specialists in it by going through it and all the information we find along our journey. We end up knowing more than our local doctors, but we are not doctors just sufferers that begin to know all about our disorder.
    I hope your appointment goes well, and that your day is a good one.
    Thanks for your lovely comment 😀

  4. Nicola

    Fab site Andrea! You site is so good I’m taking a print out to my Gp this week of all the symptoms. He’s very understanding but he’s learning about Fnd like I am. I look forward to hearing of any updates you have & I will definitely let you know if any treatment I have seems to help & of news I may find through my investigations into this mad, mad condition! 🙂 xx

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Aww I Hurt

Image from Google pictures. I’ve been busy all week, trying to write about my weekend away in London over the Bank Holiday weekend at the end of May. I will get it finished eventually, or maybe break it down into parts to get it posted. As it is all about mobility issues I had, that …

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FMD What’s the difference between the overlapping movement disorders? 

Functional Movement Disorder has many overlapping symptoms of other movement disorders, such as Dystonia, MS, Parkinson’s, Lyme Disease, Lupus, Chorea, and many, many other movement disorders.  The difference being that whilst these others are an organic brain disorder, then some may possibly shorten life. The functional movement disorder is not, it is classed as psychological …

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